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Matt Smith
I began treatment
with anti-neoplastons in March of 1997. I stayed at the clinic
until Id received sufficient training to prepare my I.V.
medicine, learn when and how to change the tubing, change the
dressing on my implant and other necessary medical maintenance
procedures. The Burzynski clinic carefully watched my progress
with the treatment, kept a close eye on my fluid intake, made
sure I had regular MRI scans, and made sure I had doctor back
in Las Vegas to monitor my treatment once I went home. The staff
was not only professional but easy to get along with.
After just
a few weeks on the I.V. treatment my neurologist confirmed from
an MRI scan that the tumor was 15% smaller than a previous MRI.
This was extraordinary news but after another couple of months
(June, 1997) on the treatment, the tumor only diminished another
12%. Although I was on a fairly high dosage of the medication,
Dr. Burzynski increased my dose to a higher level. I took the
higher dose for two months and had another scan at the end of
July, 1997 and the tumor had all but diminished entirely.
I stayed on
the medication for a year and then I was able to take the anti-neoplaston
treatment orally. I stayed with the oral treatment for several
months until an MRI scan showed a small recurrence according to
my local neurologist, Dr. Glyman. It was Dr. Burzynski opinion
that I should go back on the full I.V. dose for a longer period
of time.
As it turned
out, I went back on the full dose in December, 1998. The next
scan I had in January, 1999 came back normalwith no indication
of the tumor whatever and to this day Ive not had any indication
of recurrence on the scans. I completed the treatment in March
2000 and have not had any medication since that time.
Being on the
I.V. treatment was not easy. But after the treatment was over,
my neurologist confided in me that had I received radiation or
some of the other options (which have proven largely ineffective
for my condition) my quality of life would have been compromised
to some degree because of the reduced brain functionality. I understood
this from the research me and my family had done while I was investigating
my options but this was the first time my personal physician had
admitted it.
During and
since the treatment, Ive been able to continue normal activities.
This is due to the non-toxic nature of the medication, unlike
some of the other treatments used for a brainstem glioma. In 1999
I got married to Carolyn Bodily and in December of that same year
we had a baby girl we named Anna. On July 30, 2001 we had another
baby girl we named Rebecca. For nearly the entire duration of
my treatment I continued to work for the same company, so I was
able to work.
As far as
my nursing skills are concerned, a doctor in the E.R. brought
his staff in to see my catheter implant after it had been in for
nearly three years and proudly told them how long I had had it
and that it was because I didnt let anyone else touch
it. That was true, although I didnt tell him that
in those words. On another occasion, a home health nurse from
my insurance company came to see if I could change my I.V. dressing.
She was a little over-bearing and stiff about the whole affair
until she watched the way I did it. There was a noticeable change
in her demeanor I suppose because I did a good job. The nurses
at Burzynski had trained me with precision. I have to admit, though,
I didnt follow the procedures to the letter in a lot of
cases. I learned why certain procedures were followed and what
things I could do without and in this way, saved some money on
supplies. For instance, I didnt change my dressing as much
as I was told you were supposed to. I did keep it very clean,
however. I found that if I changed it too much, the adhesive was
hard on my skin. I found other shortcuts that paid off in saved
time and money but I was very careful, notwithstanding.
Matt Smith,
February 4, 2002
This patient has requested to be contacted through Burzynski Patient Group. <maryjo@siegel.net>
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